Authors

Kailey Johnson

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Description

My chosen Capstone project topic is pediatric end of life care as a quality problem in health care. As I have researched, there was a study conducted about advanced cancer pediatric patients. It stated, “A study of children with advanced cancer revealed that 48% had pain, 46% fatigue, and 37% irritability. In addition, many bereaved (and nonbereaved) parents experience psychological distress, poor health behaviors, work impairment and financial hardship.” (Johnston, 2017) I chose this topic because of the hospice population I have begun to work with and my passion for pediatric healthcare. As you may know, the word hospice is usually a taboo word, and the topic is not an easy one to have when discussing goals of care of a loved one. It’s an extremely difficult topic in pediatric populations. However, children are more at risk for increased suffering due to the lack of resources to educate families and the clients about services that should be provided to assist them into end-of-life procedures.

Publication Date

4-16-2025

Disciplines

Higher Education | Scholarship of Teaching and Learning

Pediatric End-of-Life Care: Communication Quality Project

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